Showing posts with label living. Show all posts
Showing posts with label living. Show all posts

Monday, September 3, 2018

This is How You Heal

Arriving (M.A. Reilly, Over the Atlantic Years Ago)
I.

In the year after his death, broken from its moorings, my body no longer felt like mine.  Adrift, I felt legless. Yes, I lifted an arm to take down the tea cup. I pressed an arm against the doorway. I moved in the world with a mindlessness that kept the separate, broken parts of me together.  The limbs I once knew for 56 years propelled me into the world where I least wanted to go and where I was most desperate to escape to.

Sorrow weighs and now I see it is more anchor than burden.

II.

Three years have passed and sorrow lifts like the first rays of morning sunlight across the sea. I am home in this body again, different than I was before. But aren't we all moving to stay whole?  Isn't that the impetus in life?

Here's a truth to hold close in those early days when you most want to distance yourself from the pain of loss. Sorrow does lift and you lift it with the grace of something you could not know before.

Saturday, July 16, 2016

SOL16: Seeking Lazarus

I. 

I've been listening to Oprah and Deepak's Getting Unstuck: Creating a Limitless Life. This is a 21-day mediation experience that is happening now.  Each day Oprah and then Deepak provide some centering thoughts related to helping listeners get unstuck by connecting with untapped creativity and then providing time for meditation. Each session lasts for about 20 minutes. The purpose is to help uncover how to compose a creative life through some centering thoughts and meditation. Since, I have come home from France, I have been listening. The focus for the first week is on how to be in the present moment. In week two, the focus is on choosing expansiveness, letting go of the past, and living creatively. In week three, sharing the spirit of creative awareness with others is the focus.  

There were several things I heard during the first week that I especially wanted to remember--ideas I appreciated and yet quarreled with.  On day 3, Deepak said: 
"Stuckness keeps us from accessing our creative potential, which is our birthright. To begin a more creative way of life some basic points are important. First stop comparing today to yesterday. Look upon every day as a new world, because in truth it is. Only are stuckness makes it old."

I found the idea of not comparing today to yesterday to be a bit alarming. I can't think of a day that has gone by where I have not compared my days with Rob to the absence of him in my life now.  As I listened to Deepak speak, I thought that neither he nor Oprah could have experienced what I am experiencing and so his directive to stop comparing today to yesterday must surely be for other situations, not mine. 

The more I listened, I began to realize that often I was agreeing, but I also found that I would qualify what had been said when it might require me to live more deliberately and move on from the loss of Rob--to not hold myself in some waiting pattern as if Rob was coming home. And this idea of waiting for Rob to come home made me stop and ask, What is it I would have him do when he arrived? I had no immediate answer.  And so I told myself that the ideas professed by Oprah and Deepak were quite sound and that these ideas did not always apply to me. For example on Day 4, Oprah quoted Eckhart Tolle:

"Life will give you whatever experience is most helpful for the evolution of your consciousness. How do you know this is the experience you need? Because this is the experience you're having at the moment."

I thought, Yes, that can be true, but not for me now. Not at this timeSurely these words are not meant for someone who has suffered the loss I have. Surely this tragedy is not a help in any way. 

I conflated not comparing today with yesterday with requiring me to forget all about Rob. I also thought that some experiences, such as the death of a husband, are too tragic to ever serve as object lessons. Somehow my words began to ring a bit hollow and doubt entered. I began to question if perhaps, just perhaps, some of what Oprah and Deepak were saying might also apply to me even as I resisted the two ideas. It wasn't until I got to day 7 that I realized that living brilliantly as Rob asked me to do requires first and foremost, that I live and be responsible for my life. 

Yes, live.

On day 7, Oprah asked,

What makes one person react to bad news with grace and dignity, while another person experiences the same news with a sense of hopelessness, resentment, or anger? Why does one person get stuck while another uses the moment to make changes and reorient   his or her way of being in the world?  Our perceptions. Our perceptions paint our personal realities...As the author of your life, you can rewrite the story by changing your perceptions. That's a key to getting unstuck...
Years ago on a classroom wall, I quoted a line from Hamlet I found pertinent. Hamlet is explaining to Rosencrantz and Guildenstern about the relativity of thought.  Hamlet concludes,  "...there is nothing either good or/bad, but thinking makes it so." 

Hmm. 

Perhaps there were lessons here I needed to heed.

II.

Saying out loud that living, brilliantly or otherwise, requires me to be present in my life is a step towards wholeness. 

A big step. 

I must be responsible for my life. I realize that I have wanted Rob to be responsible-- from the grave--for my happiness. Even as he lived, he was not responsible for my life, my happiness although I have surely placed that responsibility in his hands these last few months.

I have forgotten that happiness and contentment are not the absence of grief.  For the longest time I have been waiting for my dead husband to return and remedy my grief.  I have been waiting for my own personal Lazarus to arise and take this responsibility from my hands.

But being responsible for another person's happiness is not a definition of love. Love is far less selfish. And though Rob loved me, he was neither able nor responsible for my happiness. That rested in my own hands.  It rests there presently and no amount of wishing can diminish that truth.

Grief cannot be remedied. It is not diminished by the number of activities done, the trips made, the sacrifices accounted, the good deeds done, or the events attended. None of these make a critical difference when it comes to healing. Rather, healing is determined by the perceptions I hold regarding the relationship between Rob's death and the quality of my life.

Only I am responsible for my life. 


III. 

Collage made from pages altered by Citra Solv
(M.A. Reilly, July 2016)
Earlier today I was playing around with pages I had altered through Citra Solv and I made a collage. The main figure reminded me of Beowulf and I thought about a line by Leo Tolstoy from War and Peace when General Kutuzov says, "...there is nothing stronger than patience and time, they will do it all" (book 10, chapter 15 ). 

Patience and time. Healing requires both. Knowing I am responsible for my life is a big step. It is a big step that I will surely forget. 

Yes, forget.  

My intentions are often larger than what I can manage. A week from now, perhaps even a day and it will be as if I never wrote these words and I will need to rediscover them again.

And again.

Ahead of me are lots of rehearsals where I will remember the gift of responsibility and accept the ambiguity that accompanies it. 

I will remember and forget well before I more fully author my life.



Tuesday, May 17, 2016

#SOL16: I Did Not Die

Stopped (M.A. Reilly, Leonia, NJ, 2012)

I.

Sometimes the distance between the hard earth I am resting on and the sky above is one my eye cannot calculate, cannot clearly discern. Other times, the sky presses so close that I think surely my exhaled breath is helping to form clouds that drift just out of sight.

Everything moves.


II.

When I began writing about the diagnosis, about Rob's too sudden death, about what my life was mostly like during his illness, what it felt like right after his death, and now what it is becoming, I made a promise to tell the truth as I understood it--to not back away from unpleasant thoughts. I wanted an untainted record of the last year. Here in this digital light, I wanted to tell you what it means to be unfinished, to be both scared and courageous, to feel slight against the crush of pain, to utter what is mostly unnamable and to feel a flicker of possibility.

Yes, possibility.

What I could not know during those last days with Rob when I sat beside the hospital bed watching him sleep, looking out the rear window to our yard and the woods beyond was how significant space would become in the months following his death.


III.

Here's a slim truth I understand now and again: The death of your lover, your spouse, the father of your child, your happy-ever-after is mostly a disquisition about collapsing space that is folded and unfolded sometimes at will.

As Rob was dying, the world contracted and grew so very small until the drone and spit of the oxygen machine became the very breath we all took and exhaled. The whole house became attuned to the intake and exhalation of that mechanical breath. We breathed as one unit, a syncopated composition, until on that late March afternoon, we stopped like a flipped switch.

I thought not breathing meant we all had died.
It did not.


IV.

After Rob's death, huge vacancies assembled. Where once there had been flesh covering bone, now I was largely jagged openings, holes you could drive a fist through. Across three decades, Rob and I became more assemblage, less solo bodies. After his death, my body was broken; a mere tracing of the places where I had loved and lost my husband.

In the weeks following, little stuck to me: words, deeds, thoughts, feelings came and went. I was more drifting cloud than hard earth. What little ground I did find in those odd nights and days felt spongy, less solid, less known to my touch.

I so wanted to be all better and I was not. I wanted to be handed the map of my life and told go this way, now. And out of this unattainable state, a restlessness grew and grew until standing in it was so unbearable that I found myself trying to out-run my life and failing.


V.

Each morning I walk. I walk because I must. I walk so I can hear what I need to say and what I am saying now is that "I am not content to be a mere tracing of my life."

I am not content.

Not content.

There, I said it.

And though this feels like a betrayal for moving on, living means leaving the past behind, leaving the fiction. I cannot stand in the world where Rob remains alive and live.

If Rob helped me to know anything during our life together it was this: to replicate the past like a loop gone mad is not to live.

When I walk I tell myself, Don't mistake the tracing for a map.


VI.

And what feels uncomfortable to say out loud, what still feels like betrayal of Rob's love is that in acknowledging this discomfort, this malcontentedness, new spaces are emerging. I am alive. I did not die in early March even though my heart felt stopped, my breath felt gone.

Lately, I sense spaces of opportunity blooming like wild irises that I have suddenly come upon while out walking. These flashes of beauty move in and out of my range of sight, momentarily bridging the vacant spaces within me like strings of lavender and yellow light tossed against the darkness.

Clouds drift.
Starlight flickers.

Each new space arises alongside the odd marriage of wife-widow-mother-woman. I am a complication composed of hard ground, drifting clouds, flickering stars and such uncertainty save this: I did not die.

I don't know what I am becoming and for now that is good enough.


Monday, April 4, 2016

#SOL16: The New Normal


Downtown Columbus, OH (M.A. Reilly, iPhone, 2016)

Devon and I were in Ohio this past weekend, attending a Counter Strike tournament which sported a $1,000,000 prize purse and had teams from around the world competing. I know almost nothing about the game or the teams that competed. Devon began schooling me last week as we watched a few matches at home and I quickly began to get a handle on the teams, the objectives, and some of the strategies. E-sports are big in our home and before Rob died he told me that I needed to step in and support Devon in his interest in this computer game like he would have.
At the Tournament

Months ago this tournament was announced and it was the first time a Counter Strike major tournament was being held in the United States. Devon plays on a team and competes and so he was excited about it being relatively close to home. Unfortunately with Rob sick at the time we couldn't commit to going and though Devon is 17, he is too young to rent a hotel room. Like most things, Devon understood all of this and said it wasn't a big deal, but Rob and I each knew differently. With all that was going on with Rob, he and I forgot about the tournament and Devon didn't bring it up again.

A couple of weeks after Rob died I asked Devon about the tournament and if it had happened. He told me it was happening the first week of April and I asked him whether he still wanted to go. He was able to secure two tickets and we made the trip here. At that time when we were having these discussions most everything scared me. Losing Rob undermined my capacity to make simple decisions and to take almost any initiative. Even as I felt paralyzed, I recognized the need to act nonetheless. I have traveled all over the world with and at times without Rob. Traveling from the east coast to Ohio was hardly a sojourn. It felt important to do this and be here for Devon and so I booked the flight, arranged the hotel, and actually had a very good time with my son. It has been a long time since we were able to get away and though I had a few weepy moments thinking about how much Rob would have enjoyed this with his son, overall the long weekend went well.

This is the new normal. In getting on with living, Devon and I need to create new rituals, new memories. Nothing is harder and yet, nothing feels more necessary.  And though it may not seem like a big deal, going to Ohio this weekend was a start.


Thursday, March 31, 2016

#SOL16: What Makes a Life Worth Living?

I was searching for a vocabulary with which to make sense of death, to find a way to begin defining myself and inching forward again. 
Paul Kalanithi, 2016, When Breath Became Air, p. 147.
I.

An important question that emerges alongside the diagnosis and spread of cancer is: What makes a life worth living? Faced with imminent death, the question takes on significant dimensions. Yet, it is a question not limited to the cancer patient only. Family and close friends also struggle to answer this question as well.

What makes a life worth living? What do we most value?  

For late stage cancer patients, like Rob, for whom no cure existed there is a dynamic that emerges as the illness progresses that alters responses to those questions. There is no single consistent answer. Across the last six months of Rob's life we each grappled with this question and I witnessed the enormous struggle he waged as he edged towards death. Facing death when he had fought so hard to live required a courage I had never seen.

There's an appointment I must keep, he told me a week or two before he died. I can't recall what it is.

I'm dying, Mary Ann. I'm dying, he said to me with such acceptance that I just rested my head on his bed and cried.

The combination of the surprising stage 4 lung cancer diagnosis we learned this past September and the immense and constant pain from metastasized spinal lesions and then the spread of cancer across the entire right side of his body shifted our priorities--invited us to look past what we once felt was important, and allowed us to rest our eyes more on the goodness we have sent and wanted to send into this world.

We are what we give. I learned that watching my husband die. So much of what we accumulated in our 28 years together was more burden than beauty by Rob's end.

II.

Now that Rob has died, answering the question, What makes a life worth living? nags at me--demands my attention. Why am I here?  

A life worth living is connected to the quality and quantity of goodness we produce, the brilliance with which we live our lives, and all of this is complicated by the often difficult understanding that conjuring a memory of my past life as a substitute for the new life I must now compose will not work. Such acts dishonor each of us. Wanting a life that cannot be had is not an answer to what makes life worth living for it denies life, and keeps me from embracing the ambiguity of what might be made.

So what am I seeking? What life is worth living?

I want to live well by giving more to others, using the handful of gifts and talents I have to do good acts. I want to be a terrific mom to Devon--to champion him and support his dreams.  I want to be a loving sister to my brothers. I want to love fully.

Mostly though, I want to honor my husband and the love we share by living deliberately. He'd celebrate that.



Sunday, February 21, 2016

#SOL16: Small Moments of Grace

Rob at an Earlier Time

I.

Watching the person you love slowly die is agonizing and intimate and oddly, it is also full of small moments of grace.

For the last few days Rob has mostly slept so deeply it has been a challenge to rouse him. Yet, since last night, he has been mostly awake seeing visions and hallucinating and saying goodbye. The hallucinations were mostly about modes of transportation: horse, jet, bus--that failed in some way.

"Get me my horse," Rob directs me, motioning with his hand at what I suspect must be a horse. It's 2:30 in the morning and unfortunately that task cannot be done.
"My parents are on that jet," he'll later tell me as he indicates to what I suspect is a jet in the sky. "It left without me."
Still later I see him poking with a finger in the air.
"What are you doing?"
"Checking the bus schedule."

My brave husband is fixing to leave, but can't quite do it. The horse can't be corralled, the jet left without him, and the bus is nothing more than a schedule.
Last night I traveled along with him inside a few of the hallucinations. His coordination is poor and he spends a lot of restless time picking at the covers. At one point he caught my face with his hand and looked directly at me and said, I'm dying. I could barely nod, yes.

II.

Today he wanted to kiss me and sing with Jane and Robyn and Jack.  He was filled with such immediate joy.  Later when it was just us, he wanted to kiss again and tell me to live well with our son.

"Live. You understand? I want you and Dev to really live well."
"Yes, we'll live well.  We'll live with all you have shown us."
"Good, that's what I want.
"We'll do it brilliantly."

I want to savor these moments with Rob. I want to remember them, hold them to my heart when I no longer have him to hold.  

Saturday, August 23, 2014

Poetry Break - Steps

Etta and Butch Go For A Ride (M.A. Reilly, 2009)

Steps


               - Frank O'Hara



How funny you are today New York
like Ginger Rogers in Swingtime
and St. Bridget’s steeple leaning a little to the left


here I have just jumped out of a bed full of V-days
(I got tired of D-days) and blue you there still
accepts me foolish and free
all I want is a room up there
and you in it
and even the traffic halt so thick is a way
for people to rub up against each other
and when their surgical appliances lock
they stay together
for the rest of the day (what a day)
I go by to check a slide and I say
that painting’s not so blue


where’s Lana Turner
she’s out eating
and Garbo’s backstage at the Met
everyone’s taking their coat off
so they can show a rib-cage to the rib-watchers
and the park’s full of dancers with their tights and shoes
in little bags
who are often mistaken for worker-outers at the West Side Y
why not
the Pittsburgh Pirates shout because they won
and in a sense we’re all winning
we’re alive


the apartment was vacated by a gay couple
who moved to the country for fun
they moved a day too soon
even the stabbings are helping the population explosion
though in the wrong country
and all those liars have left the UN
the Seagram Building’s no longer rivalled in interest
not that we need liquor (we just like it)


and the little box is out on the sidewalk
next to the delicatessen
so the old man can sit on it and drink beer
and get knocked off it by his wife later in the day
while the sun is still shining


oh god it’s wonderful
to get out of bed
and drink too much coffee
and smoke too many cigarettes
and love you so much