tag:blogger.com,1999:blog-2899447029099688486.post378464645096006811..comments2024-03-26T05:20:10.232-04:00Comments on Between the By-Road and the Main Road: #SOL17: A New Self-NarrativeMary Ann Reillyhttp://www.blogger.com/profile/14349201167828984708noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2899447029099688486.post-55818385886452285382017-04-20T21:41:56.533-04:002017-04-20T21:41:56.533-04:00I know. I know.I know. I know.travelinmahttps://www.blogger.com/profile/07362929133418390813noreply@blogger.comtag:blogger.com,1999:blog-2899447029099688486.post-28678270552616691442017-04-20T20:53:35.134-04:002017-04-20T20:53:35.134-04:00I was hoping for an exception too. We all were. It...I was hoping for an exception too. We all were. It still shocks me. Mary Ann Reillyhttps://www.blogger.com/profile/14349201167828984708noreply@blogger.comtag:blogger.com,1999:blog-2899447029099688486.post-45968290538782088652017-04-20T19:06:27.955-04:002017-04-20T19:06:27.955-04:00If they don't know.....I think it best to be c...If they don't know.....I think it best to be cautious about what you relate to the patient and the families who hang on every word. I remember trying to read the doctor's body language (expert from Dana Farber) he sighed and blow out through his mouth before he spoke. I knew it wasn't good. He admitted he didn't know. The care in Boston was spectacular. We did not get the travelinmahttps://www.blogger.com/profile/07362929133418390813noreply@blogger.comtag:blogger.com,1999:blog-2899447029099688486.post-54225109545866406642017-04-20T18:09:47.524-04:002017-04-20T18:09:47.524-04:00It is sad and as I read what you have written I re...It is sad and as I read what you have written I realize that it is terrible and common. Rob had neurosurgery 7 weeks before he died. We had been told he could not have the surgery unless he had a year to live. 4 weeks later we would be told he was terminal. I think the doctors simply don't know.Mary Ann Reillyhttps://www.blogger.com/profile/14349201167828984708noreply@blogger.comtag:blogger.com,1999:blog-2899447029099688486.post-48418579491748447072017-04-20T17:59:39.234-04:002017-04-20T17:59:39.234-04:00This.....all of it is all too familiar with a few ...This.....all of it is all too familiar with a few subtle differences. This day a year ago marks Jerry's diagnosis and tomorrow marks his surgery where we were told they got it all and dozens of times was reminded, "he is not going to die from this." Following the procedure he felt great, then through the summer he was in so much pain and fatigued. "This is not cancer," we travelinmahttps://www.blogger.com/profile/07362929133418390813noreply@blogger.comtag:blogger.com,1999:blog-2899447029099688486.post-72725088810815263212017-04-20T17:55:13.005-04:002017-04-20T17:55:13.005-04:00This comment has been removed by the author.travelinmahttps://www.blogger.com/profile/07362929133418390813noreply@blogger.com